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Table 1 Demographics of women in IVF Study (1994–2003), by response to ART-FS (2018), N = 2644

From: Self-reported infertility diagnoses and treatment history approximately 20 years after fertility treatment initiation

 

ART-FS status

 

Recontacted and completed

Recontacted and did not complete/consent

Not successfully recontacted

 

N (%)

N (%)

N (%)

 

808

317

1519

At enrollment of IVF Study

Year of first IVF cycle of IVF Study

 1994–1998

391 (48.4)

150 (47.3)

693 (45.6)

 1999–2003

417 (51.6)

167 (52.7)

826 (54.4)

 Age (years) at first cycle, mean (SD)

35.4 (4.0)

36.8 (4.2)

35.0 (4.4)

Race/Ethnicity

 Non-Hispanic white

759 (93.4)

282 (89.0)

1330 (87.9)

 Black

12 (1.5)

12 (3.8)

63 (4.2)

 Hispanic

10 (1.2)

8 (2.5)

27 (1.8)

 Asian

22 (2.7)

11 (3.5)

81 (5.4)

 Other

4 (0.5)

4 (1)

12 (0.8)

Religion

 Roman Catholic

400 (49.5)

170 (54.0)

790 (52.2)

 Protestant

203 (25.1)

76 (24.1)

341 (22.5)

 Jewish

91 (11.3)

26 (8.3)

116 (7.7)

 Other

27 (3.3)

8 (2.5)

87 (5.8)

 No organized religion

84 (10.4)

35 (11.1)

179 (11.8)

Marital status

 Married

793 (98.1)

307 (96.9)

1485 (97.9)

 Not married

15 (1.9)

10 (3.2)

32 (2.1)

Highest education completed

 Less than college, including technical schools

112 (13.9)

76 (24.0)

401 (26.5)

 College

359 (44.4)

133 (42.0)

647 (42.7)

 Graduate school

336 (41.6)

108 (34.1)

468 (30.9)

Cigarette smoking status

 Current smoker

34 (4.2)

33 (10.4)

112 (7.4)

 Former smoker

209 (25.9)

104 (32.9)

446 (29.4)

 Never smoker

564 (69.8)

179 (56.7)

957 (63.2)

Ever had depression requiring medication

   

 Yes

73 (9.1)

27 (8.6)

141 (9.3)

 No

731 (90.9)

287 (91.4)

1372 (90.7)

Gravidity (have ever been pregnant)

 Nulligravid

408 (50.7)

145 (46.0)

719 (47.4)

 Gravid

397 (49.3)

170 (54.0)

799 (52.6)

Parous (had at least one prior viable pregnancy)

191 (23.9)

84 (27.1)

349 (23.2)

History of miscarriage or stillbirth

181 (22.6)

73 (23.6)

370 (24.6)

IVF Study Clinical Records

Mean time between treatment initiation and 2018 follow-up (yrs), (SD)

19.6 (2.7)

19.5 (2.8)

19.5 (2.7)

Mean IVF cycles (SD)

2.16 (1.3)

2.15 (1.3)

2.16 (1.3)

Total IVF cycles resulting in transfer

 0

25 (3.1)

5 (1.6)

31 (2.0)

 1

354 (43.8)

145 (45.7)

694 (45.7)

 2

236 (29.2)

84 (26.5)

402 (26.5)

 3

103 (12.8)

56 (17.7)

233 (15.3)

 4+

90 (11.1)

27 (8.5)

159 (10.5)

Cancelled IVF cycles

 1

130 (16.1)

72 (22.7)

264 (17.4)

 2

29 (3.6)

17 (5.4)

70 (4.6)

 3+

7 (0.7)

4 (1.3)

20 (1.3)

Had at least one successful IVF cyclea

444 (55.0)

99 (31.2)

699 (46.0)

Had at least one non-successful IVF cycleb

483 (56.6)

209 (65.9)

924 (60.8)

Cycle with pregnancy lossb

 1

148 (18.3)

41 (12.9)

283 (18.6)

 2+

22 (2.7)

17 (5.4)

52 (3.4)

Cycle with non-successful non-loss pregnancy outcome b

 1

221 (27.4)

102

410

 2

123 (15.2)

44

240

 3

43 (5.3)

25

81

 4+

21 (2.6)

11

51

Primary infertility diagnosis (clinical records)

 Polycystic ovarian syndrome

41 (5.1)

6 (2.0)

83 (5.5)

 Endometriosis

111 (13.7)

32 (10.1)

202 (13.3)

 Uterine factor infertility

18 (2.2)

11 (3.5)

42 (2.8)

 Tubal factor infertility

133 (16.5)

73 (23.0)

326 (21.5)

 Diminished ovarian reserve/Increased maternal age

56 (6.9)

29 (9.2)

112 (7.4)

 Male factor infertility

279 (34.5)

90 (28.4)

490 (32.3)

 Other/Unknown

162 (20.1)

67 (21.1)

253 (16.7)

 Missing

8 (1.0)

9 (2.8)

11 (0.7)

  1. ART-FS AfteR Treatment Follow-up Study, IVF in vitro fertilization, SD standard deviation
  2. Column totals may not sum to 100% because individuals with missing responses have not be included
  3. a Successful IVF cycle included participant having a livebirth or participant having at least a chemical pregnancy, but pregnancy outcome is not known
  4. b Non-successful non-loss pregnancy outcomes included: never became pregnant and therapeutic abortion. Pregnancy loss outcomes included: participant having a chemical pregnancy (that didn’t result in livebirth), molar pregnancy, ectopic pregnancy, spontaneous abortion, and stillbirth