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Table 1 Demographics of women in IVF Study (1994–2003), by response to ART-FS (2018), N = 2644

From: Self-reported infertility diagnoses and treatment history approximately 20 years after fertility treatment initiation

  ART-FS status
  Recontacted and completed Recontacted and did not complete/consent Not successfully recontacted
  N (%) N (%) N (%)
  808 317 1519
At enrollment of IVF Study
Year of first IVF cycle of IVF Study
 1994–1998 391 (48.4) 150 (47.3) 693 (45.6)
 1999–2003 417 (51.6) 167 (52.7) 826 (54.4)
 Age (years) at first cycle, mean (SD) 35.4 (4.0) 36.8 (4.2) 35.0 (4.4)
Race/Ethnicity
 Non-Hispanic white 759 (93.4) 282 (89.0) 1330 (87.9)
 Black 12 (1.5) 12 (3.8) 63 (4.2)
 Hispanic 10 (1.2) 8 (2.5) 27 (1.8)
 Asian 22 (2.7) 11 (3.5) 81 (5.4)
 Other 4 (0.5) 4 (1) 12 (0.8)
Religion
 Roman Catholic 400 (49.5) 170 (54.0) 790 (52.2)
 Protestant 203 (25.1) 76 (24.1) 341 (22.5)
 Jewish 91 (11.3) 26 (8.3) 116 (7.7)
 Other 27 (3.3) 8 (2.5) 87 (5.8)
 No organized religion 84 (10.4) 35 (11.1) 179 (11.8)
Marital status
 Married 793 (98.1) 307 (96.9) 1485 (97.9)
 Not married 15 (1.9) 10 (3.2) 32 (2.1)
Highest education completed
 Less than college, including technical schools 112 (13.9) 76 (24.0) 401 (26.5)
 College 359 (44.4) 133 (42.0) 647 (42.7)
 Graduate school 336 (41.6) 108 (34.1) 468 (30.9)
Cigarette smoking status
 Current smoker 34 (4.2) 33 (10.4) 112 (7.4)
 Former smoker 209 (25.9) 104 (32.9) 446 (29.4)
 Never smoker 564 (69.8) 179 (56.7) 957 (63.2)
Ever had depression requiring medication    
 Yes 73 (9.1) 27 (8.6) 141 (9.3)
 No 731 (90.9) 287 (91.4) 1372 (90.7)
Gravidity (have ever been pregnant)
 Nulligravid 408 (50.7) 145 (46.0) 719 (47.4)
 Gravid 397 (49.3) 170 (54.0) 799 (52.6)
Parous (had at least one prior viable pregnancy) 191 (23.9) 84 (27.1) 349 (23.2)
History of miscarriage or stillbirth 181 (22.6) 73 (23.6) 370 (24.6)
IVF Study Clinical Records
Mean time between treatment initiation and 2018 follow-up (yrs), (SD) 19.6 (2.7) 19.5 (2.8) 19.5 (2.7)
Mean IVF cycles (SD) 2.16 (1.3) 2.15 (1.3) 2.16 (1.3)
Total IVF cycles resulting in transfer
 0 25 (3.1) 5 (1.6) 31 (2.0)
 1 354 (43.8) 145 (45.7) 694 (45.7)
 2 236 (29.2) 84 (26.5) 402 (26.5)
 3 103 (12.8) 56 (17.7) 233 (15.3)
 4+ 90 (11.1) 27 (8.5) 159 (10.5)
Cancelled IVF cycles
 1 130 (16.1) 72 (22.7) 264 (17.4)
 2 29 (3.6) 17 (5.4) 70 (4.6)
 3+ 7 (0.7) 4 (1.3) 20 (1.3)
Had at least one successful IVF cyclea 444 (55.0) 99 (31.2) 699 (46.0)
Had at least one non-successful IVF cycleb 483 (56.6) 209 (65.9) 924 (60.8)
Cycle with pregnancy lossb
 1 148 (18.3) 41 (12.9) 283 (18.6)
 2+ 22 (2.7) 17 (5.4) 52 (3.4)
Cycle with non-successful non-loss pregnancy outcome b
 1 221 (27.4) 102 410
 2 123 (15.2) 44 240
 3 43 (5.3) 25 81
 4+ 21 (2.6) 11 51
Primary infertility diagnosis (clinical records)
 Polycystic ovarian syndrome 41 (5.1) 6 (2.0) 83 (5.5)
 Endometriosis 111 (13.7) 32 (10.1) 202 (13.3)
 Uterine factor infertility 18 (2.2) 11 (3.5) 42 (2.8)
 Tubal factor infertility 133 (16.5) 73 (23.0) 326 (21.5)
 Diminished ovarian reserve/Increased maternal age 56 (6.9) 29 (9.2) 112 (7.4)
 Male factor infertility 279 (34.5) 90 (28.4) 490 (32.3)
 Other/Unknown 162 (20.1) 67 (21.1) 253 (16.7)
 Missing 8 (1.0) 9 (2.8) 11 (0.7)
  1. ART-FS AfteR Treatment Follow-up Study, IVF in vitro fertilization, SD standard deviation
  2. Column totals may not sum to 100% because individuals with missing responses have not be included
  3. a Successful IVF cycle included participant having a livebirth or participant having at least a chemical pregnancy, but pregnancy outcome is not known
  4. b Non-successful non-loss pregnancy outcomes included: never became pregnant and therapeutic abortion. Pregnancy loss outcomes included: participant having a chemical pregnancy (that didn’t result in livebirth), molar pregnancy, ectopic pregnancy, spontaneous abortion, and stillbirth
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